And the story continues

So as of today there are no clear cut answers to any of my disease related health issues (shocker).  But there are other health issues that have come up that are as of today unexplained (another shocker).  I have lots of stomach/abdomen issues which includes pain(lots and lots of pain), loss of appetite (which could be good cause with my meds, I have lost 26lbs in 4 months), over all discomfort, and the newest symptom it hurts to eat. This has gotten worse in the last month or two maybe even more now, I've been so up and down in the feel like crap department that I cant tell what day it is most of the time. Anyway it has taken me a lot of begging and whining to my Mayo clinic doctors and even my primary doctors to do something.  As of today my primary has me seeing a GI person on 9-14 and Mayo has me seeing a general surgeon on 9-21. Frankly who knows whats going on, one thinks its intestinal one thinks its a hernia? Leanne thinks its FMD related.  The only thing I think at this point is MAKE THE PAIN STOP! AND its really hard being your own advocate they should have a class for that at my college.  Oh Oh and on one of my lovely reports that got sent to my house (don't know why) there was some node thing found on my lung or in my lung cavity, that now I go in for a CT scan tomorrow to see if that's grown moved gone away, that my doctor decided not to tell me about back in May because "It wasn't concerning and I had enough stuff going on". MY luck cancer will be next... Kidding people... But GAWD forbid that did happen PARTY at my house cause I just cant even think about it right now and we would all just get sh!t face drunk then worry about what to do next! And all you friends out there that have never come to my house better get your a$$ over here cause I'm pretty sure I'd for once would need the support!

On a more pleasant but not necessarily happier note, school is good, lots of homework, in fact I should be doing it, instead of writing this blog but I didn't start this blog, just to make one little post now did I. I love 2 of my instructors, like one of them and totally can not STAND the last one... SHE IS EVIL, but more about her later if I can even stand to waste my time writing about her.

Have a stellar day all! Love ME

The being of my major health issues

  So, back in February '10 I started noticing some weird headaches that were not normal for me. And anyone who has headaches will tell you, when they are different its time to get them checked out. Well at first I did nothing, and then Superbowl Sunday I felt "droopy" on the left side of my face, I called Leanne over and asked her to take a look, she said that my eye was squinty and that it was kinda droopy. On top of all that I got very tired and went to bed it was about 7:30 pm or so.
  The next morning after that I decided with the different headaches the droopy thing and the excessive tiredness I had been having it just might be time to go in. So I did. Lucky for me I got a wonderful urgent care doctor who scheduled me for an MRI that very day and it was off for that I went.  The next morning I got a call saying they wanted an MRA that day for sure and with some demands from the doctor, next thing I know I'm in for an MRA (at the time I didn't know what an MRA was but basically it an MRI with contrast dye given through and IV).  Okay that test done, kinda thinking okay something must have been seen on the MRI if they wanted this test so I was a bit nervous but tried not to worry too much, but I honestly don't remember how I felt at the time.
  That Wednesday morning Leanne walks back in the house after taking the kids to daycare (she missed work for me, how sweet) and said she just wanted to be with me in case I got bad news... So maybe I was more nervous than I remember.  Well at about 8:30 or 9am the phone rings, it the doctor or nurse I don't remember, and the say we need you to come to the hospital as soon as possible to check in we found something in your MRA and we need to do further tests and whatnot... I was FREAKING OUT... I was out of my mind thinking is this a tumor, brain aneurysm or what the hell is going on... So I said to the nurse/doctor  okay can I go see my kid first and then come in and they said well we really need you to come as soon as possible we have a bed all ready for you... Holy cats their worried and I wanna see my kid, so I went and saw my son anyway just in case it was really bad. 
  So I go to the hospital and long story short 3 days later CT scans, blood work, doctors and all that jazz later. I am diagnosed with Fibromusclar Dysplasia or FMD for short.  Now you ask yourselves great what is it, well its a vascular disease that affect the major artery's of the body.  My FMD happens to be affecting my carotid arteries I have a block left carotid a partially blocked right carotid and a dissection in the right. (a dissection is a tearing in the wall of the artery) My disease can cause me to have a stroke or a brain aneurysm, it causes me to get tired easy, I have memory issues (as some of you already know) ((keep the jokes down)). The first options of treatment was to treat the dissection so for 6 months I was on Coumadin (blood thinners) but as of Wednesday 8-25-10 I was taken off as the dissection is no worse and no better. So honestly right now I don't know whats going to happen except I will be on a baby aspirin for life, and most likely MRI/MRA's every six months for life as well.
  Anyway, I will update more later but this is a good starting point I think.