Tuesday, July 26, 2011

I'm headed to NYC

So I haven't updated IN forever, so here it is, to the best of my ability, limited as it maybe.
I have been having tons of problems lately, and quite frankly they do not know whats causing them.  It could be TIA's, it could be seizures, it could be complex migraines, who really knows at this point, the doctors here sure don't.  My "good" doctor Dr. Foley thinks it's my FMD and hence my trip to NYC. 
I will be going out to see Dr. Jeff Olin who is the top FMD doctor in the country, and at that time (we hope) he will be deciding if I will be needing stents or maybe angioplasty in my carotids to hopefully stop these "events".  Which is what I have now started to call these almost daily things that have been happening.  What else has been going on is my right side has been going almost like paralyzed where my face droops and I cant move my arm or leg for anywhere between 10 minutes to an hour.  I then get a God awful headache and extremely tired afterwords, and it usually means my day is shot.  For those who have seen me have them they say I get totally pale in the face too and I can't smile normally either.  Its very scary stuff to say the least but really its all I can explain about it now.
I have just been re-scanned with MRI/MRA and there are no new findings at all so there's nothing to report with that, and it does show that I have not had a stroke, so this is a good thing. 
So wish me luck in New York because the whole reason we are going is to hopefully get answers and surgery.

7 comments:

Granny, did you wear glass slippers? said...

Good luck, hope you find answers to your troubling medical issues.

Kari Muth RN, BSN said...

I love you Chane Boo! You are going to see the best of the best. We are behind you all the way and we will be here for you no matter what the news.
Keep smiling- even if it is crooked sometimes :) :J

Anonymous said...

I am confident that this doc will get you some answers!!!! Well confident, optimistic and praying!!! Love ya buddy!!!

Amy B Gottberg said...

Good Luck Sweetie; let's hope that Dr. Olin can make things a whole lot better for you. I send you lots of hugs and prayers.

Melinda said...

Glad your doc is making this trip possible as I know you have been struggling for answers for a long time now. Take it easy (which I'm sure you are tired of hearing) but know you are loved by many and the prayers and thoughts will keep on coming your way. Let us know if you need anything!! Love you BBFF

Aunt Mary said...

I do so hope this doc can just fix whats wrong and you can get back to leading a happy, healthy life! LOVE YOU!!

Anonymous said...

Chane, Thanks for the update. I worry about you and keep you in my prayers.
Glad you are going to NYC to see the best. Hope they can take care of the problem. Keep the updates coming.
Love Ya