Well its been over a month and I have heard about my lack of updates, so for those of you that have said Chane I've been checking... This is for you... And I want to say thank you, it means a lot to me that the people I love want to read my thoughts and keep on my happenings.
Anyway, on the health front, I will say I have had more developments. My newest doctor Dr. Foley (who I now see at Fairview Southdale) finally listened (when many other doctors of mine wouldn't) and scanned my abdomen area. The CT that was done is highly suggestive of a syndrome called Median arcuate ligament syndrome or MALS for short. http://en.wikipedia.org/wiki/Median_arcuate_ligament_syndrome Try this link if you would like more info on this. I also had a lot of blood work done and actually have an appointment with Dr. Foley tomorrow (Friday) to find out the results. Back to the MALS, my choices with this and plan(s) have been and are this, first I was asked to go in for an ultra sound to see if they could confirm the diagnosis. Unfortunately they couldn't with the ultra sound... BIG bummer. So now I have to decide if I want to wait awhile and have an angiogram (a catheter thing up my artery in my leg that shoots dye at my celiac to see if i really do have MALS). Or skip that all together, which is probably not going to be an option as MALS is rare and cause all kinds of bad stuff too. But if I do get the angiogram and I have MALS I have to then be willing to get a celiac bypass surgery. And to be quite honest I am scared as hell and don't really know what to do.
In other health related news, Mayo clinic is all they are cracked up to be, they just wanna send you to every doctor under the sun.. And I wonder why when they run blood test and send you the results and you have several that are abnormal NOT one person or doctor bothers to call you to say hey, maybe we should follow up with you cause you got some issues... SO yeah... Pretty sure I'm not very happy with them or the bill I am going to receive or the fact that I have gotten ZERO I mean ZERO help from them about my disease. Yet I see Dr. Foley once and all of the sudden I find out why i have lost 33 lbs and all it took was a scan which I begged Mayo to give me, the 4 times I went. Park Nichollet... they pretty much told me they wont treat me anylonger, because I have too vascular issues. So there goes history I built with them over the last 6 years.
So besides being scared and a bit lost right now I am actually doing well. We will just have to see how Friday goes. But my new motto: one day at a time, but still planning for my future like always!
Love to you all
Thank you for all the birthday wishes it was a fabulous day
Chane
2 comments:
Hey BBFF! I am glad to hear SOMEONE is finally listening and hopefully this is the start to good things for you. I know you are scared to death and I would be too. If you need anything or need someone to hold your hand, please know you can always count on me. I'll always have you in my prayers and thoughts as you are truly a great person. I really hope things get better and you start to feel better fast. Keep up the hard work with your health, schooling and family time as you are a strong woman! Love you hun
Good thing you found a Dr. that is more aggressive! It sounds like your not just a number with him and can form a relationship, that's important. That's what I like about my PCP, he knows me. Even my shoulder surgeon, although he is very good, I feel like I'm dollar signs and that isn't much of a relationship.
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